A 27-year-old man with a rare disease has died in an experimental gene-editing study.  He was the only volunteer.

A 27-year-old man with a rare disease has died in an experimental gene-editing study. He was the only volunteer.

The only volunteer in a unique study involving a gene-editing technique has died, and those behind the trial are now trying to figure out what killed him. Terry Horgan, a 27-year-old man with Duchenne muscular dystrophy, died last month, according to Cure Rare Disease, a Connecticut-based nonprofit founded by his brother, Rich, to try to …

A 27-year-old man with a rare disease has died in an experimental gene-editing study. He was the only volunteer. Read More »